Caring for Ageing Minds: Helping Neurodivergent Loved Ones to Thrive

This article was kindly donated by a freelance writer, Rosie Buckley. You can follow Rosie on Instagram using the hashtag @rosiewithapen 

Rosie's article is also available to in an easy read format. 

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Introduction: Autism and Ageing 

When we hear the word autism, we often think about children and the challenges they experience. It’s important to remember that autism is a lifelong developmental disability, which means it doesn’t go away. Older autistic adults often face unique challenges, and we need to ensure we support them in the best way possible.

What is Neurodiversity?

Neurodiversity is the concept that there isn’t one singular right way of learning or thinking, and that individuals naturally experience and interact with the world around them in varying ways. Neurodiversity often refers to those with neurodevelopmental disorders like autism, ADHD, and learning disabilities.

Neurodiversity aims to promote inclusion and acceptance through various approaches. This includes creating understanding and supportive environments, as well as challenging stigma by changing people’s perspectives to view different ways of learning and thinking as valuable.

Understanding Neurodiversity and Autism in the Ageing Process

Autism affects an estimated 700,000 people in the UK. It’s a lifelong developmental disability that affects how individuals think, feel, interact, and communicate. Older autistic adults experience unique challenges, but understanding these is the foundation for effective support.

• Lack of diagnosis: A study of primary health care records found that as of 2018, around 1 in 34 children had a diagnosis for autism, but only 1 in 6,000 older adults had a diagnosis. When the older generation was younger, autism wasn’t as widely spoken about or understood, which is one reason why many are left without a diagnosis. However, not having a diagnosis can create challenges. Receiving one can help older people understand themselves better and allow them to find and access the right support
  
  
• Sensory changes: Changes in senses like vision, hearing, and smell can affect older adults who are sensitive to these in different ways. Some view this as a positive change, while others may see it as more negative and struggle to navigate the shift
  
  
• Memory shifts: Autistic adults often struggle with functions like planning and organising, and shifts in memory can create additional barriers
  
  
• Mental well-being: Autistic women going through the menopause experience physical changes, but also hormonal changes, which can have an effect on mental well-being. Life stresses can sometimes cause sensory overload or lead to mental health issues like depression and anxiety
  
  
• Social Isolation: As people get older, they may socialise less due to loss, retirement, or living alone. For autistic individuals, making new friends and communicating can add an extra layer of difficulty
  
  
•  Communication needs: This may evolve as someone gets older, but adaptive approaches can help maintain connection

How To Help People Thrive

• Create a consistent routine: Establishing this can provide structure, predictability, and security, helping to reduce sensory overload and overwhelming emotions. This sense of stability also promotes independence, reducing feelings of stress and anxiety
  
  
• Accessible environments: When creating an accessible home environment, it’s important to understand individual needs and preferences. There are several ways this can be done, such as putting stickers or labels on cupboards, dimming lighting, and reducing noise where relevant
  
  
• Planning for the future: Thinking about future supported living options can help ensure your loved one has the resources they need to thrive and maintain independence. There are many options to explore, including home care, supported living services, and various residential care homes to choose from
  
  
• Celebrate neurodiversity: To create a world where autistic people can be themselves and thrive, we need to celebrate neurodiversity. This includes recognising unique strengths, challenging stereotypes, and creating inclusive environments

Final Thoughts

At Leeds autism services, we can support at home, in the community, or at one of our locations. We also provide training and consultancy services to public services, businesses, and the third sector. Through our campaigns, we work with communities, businesses, and families to create a better understanding of autism. 

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